INDIANA
Ovar’Coming Together
2625 Meridian Street, Suite 108
Indianapolis, IN 46208
Tel. (317) 925-6643
Fax. (317) 925-6673
Robin A. Jackson, Executive Director
rjackson@ovarian-cancer.org
www.ovarian-cancer.org
Ovar’coming Together’s three-fold mission is: 1) to create awareness among women and the greater community regarding early warning signs that may be indicative of ovarian cancer, resulting in earlier detection; 2) to provide resources of support, networking and education for those women diagnosed with ovarian cancer and their caregivers; and 3) to support the advancement of research for the early detection and cure of ovarian cancer. Its activities include a Speaker’s Bureau, literature dissemination, an annual Run/Walk in September, continuing education opportunities for physicians, special events such as a survivor luncheon, presence at health fairs, quarterly educational meetings and a quarterly newsletter.
KENTUCKY
COCO (Capitol Ovarian Cancer Organization)
P.O. Box 3099
Frankfort, KY 40603
Tel. (502) 695-5202
Beverly Van Houten, Director
abvanhouten@aol.com
COCO is a 501(c)(3) (pending) organization whose mission is:
•to raise awareness, increase early detection and improve treatment methods of Ovarian Cancer;
•to contribute to the ongoing research for a cure for Ovarian Cancer; and
•to provide women of the Capital City with the information necessary to make good decisions about their health care.
It was founded in memory of Debi Furnish, sister of COCO’s Chair. While looking for a way to honor her memory, Debi was struck by the lack of knowledge most women have about this dreaded disease. Thus, COCO was formed to fight for a cure and to raise awareness.
Ovarian Awareness of Kentucky
4010 DuPont Circle Suite 275
Professional Towers Building
Louisville, Kentucky 40207
Tel. (502)708-1725
Fax: (502) 708-1626
www.ovarianawarenessofky.org
elizabeth@ovarianawarenessofky.org
OAK is a 501(c)(3) organization dedicated to the support and education of Kentucky and South Indiana on ovarian cancer issues. It offers monthly support group meetings, quarterly seminars and newsletters, and it attends health fairs and city fairs to hand out awareness information. OAK presents public education programs to interested women’s groups and the medical community, and works statewide with the state women’s health office and cancer centers. OAK also advocates for ovarian research funding and has an annual “Toast to Life” survivors’ dinner.
MARYLAND
Tri-State Ovarian Cancer Alliance (Maryland, Pennsylvania and West Virginia)
6 Warfield Place
Lavale, MD 21502
Tel. (301) 729-6776
Judy Fitzgerald
info@tsovariancancerall.com
judyfitz@tsovariancancerall.com
www.tsovariancancerall.com
Tri-State Ovarian Cancer Alliance is a group of volunteers that promotes general awareness and educates the Tri-State area women and their health care providers about the risks, symptoms and treatment of ovarian cancer. It participates in a variety of community events and hands out education materials.
Ovarian and Gynecologic Cancer Coalition of Greater Washington/Rhonda’s Club
P.O. Box 12504
Arlington, VA 22219
Tel. (703) 346-3893
Paige Whitaker, Board Chair
Ann Mason, Outreach Chair
Paige88@gmail.com
ann@cancer-ovarian.org
www.cancer-ovarian.org
OCGG/Rhonda’s Club works in the Washington D.C. Metro Area (D.C., Virginia and Maryland) to improve quality of life for women surviving cancer and to promote public symptom awareness to improve earlier detection. Its programs include: Survivors Teaching Students: Saving Women’s Livessm; Public Awareness & Outreach; and Shaping the Future. It is a 501(c)(3) organization.
MINNESOTA
Minnesota Ovarian Cancer Alliance, Inc.
4604 Chicago Avenue, South
Minneapolis, MN 55407
Tel. (612) 822-0500
Fax. (612) 825-1140
Kathleen Gavin, Executive Director
kgavin@mnovarian.org
www.mnovarian.org
MOCA raises awareness regarding warning signs that may be indicative of ovarian cancer. Its mission is to create and promote resources for support, networking and education for women diagnosed with ovarian cancer in order to help them in their battle. MOCA hopes to unite and educate individuals, the medical community and organizations to overcome ovarian cancer, and it seeks to advance ovarian cancer research towards better treatment, diagnosis and a cure.
MISSOURI
St. Louis Ovarian Cancer Awareness
11015 Pine Forest Drive
St. Louis, Missouri 63126
(314) 995-6220
Grace Katzenberger
swtldy@swbell.net
www.sloca.org
SLOCA’s mission is to heighten awareness of ovarian cancer. It does this by promoting awareness of early warning signs, which should enable earlier diagnosis. SLOCA provides information about standards of care of ovarian cancer and supports ovarian cancer research. It is committed to making an impact on ovarian cancer survivorship.
NEVADA
OCAN – Ovarian Cancer Alliance of Nevada
2827 Utica Circle
Las Vegas, NV 89146
Tel. (702) 796-0430
Fax. (702) 221-5878
Liz Williams, President
ovarian@ocan.org
www.ocan.org
OCAN is a 501(c)(3) organization founded in June 2000 by Crispin Morrison, who lost her life to ovarian cancer in 2003. OCAN’s two-fold mission is to educate the public, including healthcare professionals, about ovarian cancer, and to provide support to those affected by the disease. OCAN organizes educational programs and takes part in many community events.
NEW JERSEY
Kaleidoscope of Hope Foundation
P.O. Box 1124
Madison, NJ 07940
Tel. (973) 644-0500
Fax. (973) 984-0581
Lois Myers, President and Co-Founder
info@kohnj.org
www.kohnj.org
The Kaleidoscope of Hope Foundation is a 501(C)3 charitable organization, whose goal is to raise awareness and funds for ovarian cancer research. We were founded in May 2000 by three ovarian cancer survivors, Gail MacNeil, Lois Myers and Patricia Stewart.
Through our annual fundraising events (walkathons, silent auctions and golf outings), we have raised over $1 million. To date, we have contributed over $850,000 to organizations and institutions involved in ovarian cancer research and disease advocacy.
Creating an early detection test is a primary focus. Currently, we provide financial support to the following ovarian cancer organizations:
•The Cancer Institute of New Jersey, New Brunswick
•The National Ovarian Cancer Early Detection Program at New York University
•The Fox Chase Cancer Center’s Specialized Program of Research Excellence (SPORE)
•Hackensack University Medical Center
•Ovarian Cancer Research Fund, New York City
NEW YORK
Caring Together, Inc.
P.O. Box 12383
Albany, NY 12212-2383
Tel. (518) 783-7600
Fax. (518) 475-1139
Ann Purchase
apurchase@nycap.rr.com
www.caringtogetherny.org
Caring Together, Inc. works to educate the community and raise awareness and funds for research and support for ovarian cancer survivors and their families.
Gilda’s Club/Rochester Gynecologic Support and Advocacy Group
120 Boughton Hill Road
Honeoye Falls, NY 14472
Tel. (585) 624-5318
Fax. (585) 247-6127
Laura McNamara, Director
blmcn@rochester.rr.com
Founded in 1991, Gilda’s Club has funded ovarian cancer research and the medical expenses for women and their families, their therapies, medicines and other needs. Its goals include helping additional families in the Rochester area, forming an advocacy group and expanding fundraising opportunities and outreach activities.
GRACE’S
Syracuse, NY
Tel. (315) 637-1417
Ginger Denny, Coordinator and Survivor
admin@gracesgarden.org
www.gracesgarden.org
GRACE’S (Gynecological Cancer Survivors Reinforcing Awareness, Caring, Education and Support) is a gynecological cancer support group serving Central New York. Support group meetings are open to all women that are living with or affected by a gynecological cancer. We encourage the sharing of information, ideas, emotions, and most importantly, support for one another. In addition, GRACE’S conducts gynecological cancer education and awareness work in the local community through awareness events, lectures, and literature distribution. We believe that increased symptom awareness can lead to earlier diagnosis, resulting in better outcomes.
Hope for Heather
Frieda Weeks
P.O. Box 2208
Liverpool, NY 13089
Phone: 315-657-7879
hopeforheather.org
Frieda@hopeforheather.org
Hope for Heather is dedicated to raising money to support cancer research, education and awareness, and support families in the community with ovarian cancer.
Linda Young Ovarian Cancer Support Program, Benedictine Hospital
80 St. Mary’s Avenue
Kingston, NY 12401
Tel. (845) 339-2071 ext.103
Ellen Marshall, emarshall@benedictine.org
The Linda Young Ovarian Cancer Support Program provides resource information and a support network for women who have been diagnosed with ovarian cancer, their families and their friends in the Hudson Valley region of New York. The program is committed to prevention, early detection and health care advocacy through education to the general public and medical professionals.
Ovarian Cancer Alliance of Buffalo/Niagara
47 Majestic Circle
Amherst, NY14226
Tel. (716) 837-3239
Carol Amico
Ovarian Cancer Alliance of Buffalo-Niagara is a support group that offers encouragement and advocacy support to ovarian cancer patients and survivors. Its goals are to raise awareness of ovarian cancer to the public and to educate health care providers about the subtle symptoms of the disease. It exhibits at health fairs run by the county and local hospitals and speaks to women’s groups and share information on ovarian cancer risks and symptoms with primary care doctors and gynecologists offices.
Rays of Hope
1242 Pilot Knob Road
Kattskill Bay, NY 12844
Tel. (518) 656-9321
Fax. (518) 656-9321
Mary Davis
mmdavis0626@roadrunner.com
Rays of Hope provides support, awareness, education and advocacy. It works in a five- county area of the Southern Adirondack region of New York state to provide support for ovarian cancer patients and survivors, to heighten public awareness of the disease and to educate the public and medical communities. It partners with the GR Wood Cancer Center at Glen Falls Hospital and the NENY Ovarian Cancer Support Network.
SHARE: Self-Help for Women with Breast or Ovarian Cancer
1501 Broadway, Suite 704A
New York, NY 10036
Tel. (212) 719-0364
Toll Free (866) 891-2392
Fax. (212) 869-3431
Linda Koteen, Director of Ovarian Programs
lkoteen@sharecancersupport.org
www.sharecancersupport.org
SHARE is a not-for-profit, self-help organization that serves women, their families and friends affected by breast and ovarian cancer. Drawing on their own experiences, cancer survivors help others address the many emotional and practical issues that arise from a cancer diagnosis. SHARE’s services include hotlines, survivor-led support groups, wellness programs, educational programs, outreach programs and advocacy activities.
