Resources

Please choose from the topics below:

  1. Education and information
  2. Genetics
  3. Find a doctor
  4. Financial and legal support
  5. Clinical trials
  6. Treatment
  7. Research
  8. End of life care
  9. Caregivers and families
  10. Support
  11. Young survivors
  12. Complementary therapies and nutrition
  13. Further reading
  14. On the lighter side

The Ovarian Cancer National Alliance does not endorse any particular treatment, therapy, clinical trial, or product.  These links are offered as helpful resources and not endorsements.

Education and Information

American Cancer Society
http://www.cancer.org/Cancer/index
Information on cancer, research, advocacy, and community programs and services.

American Pain Foundation
http://www.painfoundation.org/
Online toolkit for assessing pain as a part of a treatment plan.

Association of Cancer Online Resources
http://www.acor.org/
Collection of online communities that provide information for cancer survivors.

Bright Pink
http://www.bebrightpink.org/
Provides education and support for women who are at a high risk for breast and ovarian cancer.

Cancer.net
http://www.cancer.net/portal/site/patient
Cancer information from the American Society of Clinical Oncology.  Offers podcasts, feature articles, and links to current news.

CancerEducation.com
http://www.cancereducation.com/
Educational programming and information for health care professionals, cancer patients, and their family members.

CancerPage.com
http://www.cancerpage.com/cancers/default.asp?channel=Ovarian_Cancer
Offers the latest news, research, and information on prevention, detection, and treatment of ovarian cancer, as well as interactive decision support tools.

Centers for Disease Control and Prevention
http://www.cdc.gov/cancer/knowledge/
CDC, in collaboration with the Department of Health and Human Services’ Office on Women’s Health, established the Inside Knowledge: Get the Facts About Gynecologic Cancer campaign to raise awareness of the five main types of gynecologic cancer: cervical, ovarian, uterine, vaginal, and vulvar.

Foundation for Women’s Cancer
www.foundationforwomenscancer.org
Brochures and other educational material for women who have or who are at risk of developing a gynecologic cancer. For a complete list of Foundation survivor courses click here.

Gilda Radner Familial Ovarian Cancer Registry
http://ovariancancer.com/app/index.php
An international registry of families with two or more relatives with ovarian cancer.  Offers a helpline, education, cancer information and peer support for women with a high risk of ovarian cancer.

Health Finder
http://www.healthfinder.gov/
Government and nonprofit health and human services information.  Links to carefully selected information and Web sites from over 1,500 health-related organizations.

Johns Hopkins Pathology’s Ovarian Cancer Web
http://ovariancancer.jhmi.edu/
Provides information, personal stories, and an online community.  Gives specific information about each individual ovarian tumor type.

Genetics

Survivorship
http://www.cancer.gov/cancertopics/genetic-testing-for-breast-and-ovarian-cancer-risk
Information from the National Cancer Institute (NCI) for women with a family history of breast and ovarian cancer.

Gilda Radner Familial Ovarian Cancer Registry
http://ovariancancer.com/app/index.php
An international registry of families with two or more relatives with ovarian cancer.  Offers a helpline, education, cancer information and peer support for women with a high risk of ovarian cancer.

Hereditary Cancer Center
http://medschool.creighton.edu/medicine/centers/hcc/index.php
Information about hereditary cancer and genetic testing.

Myriad Genetics
http://www.myriad.com/products/predictive.php
Information about genetic testing for hereditary cancer.

Find a Doctor

As a matter of policy, the Ovarian Cancer National Alliance does not endorse any individual doctor or hospital.

American Medical Association
http://www.ama-assn.org/ama/pub/patients/patients.shtml
Provides help finding a doctor and information about health issues.

FORCE: Facing Our Risk of Cancer Empowered
http://www.facingourrisk.org/finding_health_care/finding_specialists.html
Information from Alliance Partner Member-FORCE about finding a specialist, learning about clinical trials, finding a genetic counselor, and getting financial assistance.

Society of Gynecologic Oncologists
http://www.sgo.org/
Offers help finding local gynecologic oncologists and links to other resources for women.  Information about news related to the fight against gynecologic cancers.

Women’s Cancer Network – Ovarian Cancer
http://www.wcn.org/findadoctor/
An interactive Web site that provides a searchable listing of gynecologic oncologists by zip code.

Financial and Legal Support

Cancer Care
http://www.cancercare.org/get_help/
Professional support services to people with cancer, caregivers, children, loved ones, and the bereaved.  Offers help finding counseling and financial support.

Clinical Trials and Insurance Coverage: A Resource Guide
http://www.cancer.gov/clinicaltrials/learning/insurance-coverage
Information on insurance coverage for clinical trials from the National Cancer Institute.

Corporate Angel Network
http://www.corpangelnetwork.org/
Help arranging free air transportation for cancer patients traveling to treatment using empty seats on corporate jets.

Bridge of Blessings
http://bridgeofblessings.org/index.html
Information and application for women with cancer in need of financial assistance.

Family and Medical Leave Act Advisor
http://www.dol.gov/compliance/laws/comp-fmla.htm
Provides information on the Family and Medical Leave Act.  Lists questions to help determine the rights of employees and employers.

Federal Trade Commissioner
http://www.ftc.gov/opa/1995/12/via.shtm
Information about a Federal Trade Commissioner brochure issued to advise the terminally ill who are considering selling their life insurance policies in order to pay bills.

Look Good…Feel Better
http://www.lookgoodfeelbetter.org/
Help from a free, non-medical, brand-neutral, national public service program supported by corporate donors to offset appearance-related changes from cancer treatment.

Medicaid
http://www.cms.hhs.gov/home/medicaid.asp
Official government information about Medicaid and Medicare.

Medicare
http://www.medicare.gov/
Official government information for people with Medicare.

Mercy Medical Airlift
http://www.mercymedical.org/
Information about this nonprofit organization dedicated to serving people in situations of compelling human need through the provision of charitable air transportation.

Oncolink—An Introduction to Viatical Settlements
http://www.oncolink.com/resources/subsection.cfm?c=6&s=27&ss=72
Offers information and resources for the seriously ill who are considering selling their life insurance policy to a viatical settlement company.

Patient Advocate Foundation
http://www.patientadvocate.org/
An active liaison between patient and insurer, employer and/or creditor.  Information about resolving a patient’s insurance, job retention and/or debt crisis matters through case managers, doctors and attorneys.

Rise Above It
http://www.raibenefit.org/
Provides grants and scholarships to young adult survivors and care providers who face financial, emotional, and spiritual challenges.

Team Continuum
http://www.teamcontiuum.net/
Assists with basic needs that ease the financial stress patients and their families face by paying bills (electric, phone, water, gas, etc.), rent, tutoring, small toys, transportation and other incidental needs that arise.

The National Collegiate Cancer Foundation
http://www.collegiatecancer.org/
Provides services and support for young adults diagnosed with cancer.  Offers need-based financial support for young adult survivors pursuing higher education.

Clinical Trials

As a matter of policy, the Ovarian Cancer National Alliance does not endorse any individual clinical trial or treatment.

ACRIN: American College of Radiology Image Network
http://www.acrin.org/HOME/tabid/36/Default.aspx

Clinical Trials: Questions and Answers
http://www.cancer.gov/cancertopics/factsheet/Information/clinical-trials
National Cancer Institute fact sheet on clinical trials from 2006.

Clinical Trials: What You Need to Know
http://www.cancertrialshelp.org/
Information on cancer clinical trials, including results of research that The Coalition of National Cancer Cooperative Groups conducted with cancer patients who have participated in clinical trials.

Learning About Clinical Trials
http://www.cancer.gov/clinicaltrials/learning
Fact sheets and brochures on clinical trials from The National Cancer Institute that can be downloaded in PDF format. (The section on patient care costs is particularly helpful.)

10 Step Guide to Finding a Cancer Treatment Clinical Trial
http://www.cancer.gov/clinicaltrials/learning/treatment-trial-guide

Avva Ask
https://itunes.apple.com/us/app/avva-ask/id638499840?ls=1&mt=8
A free iPhone app that helps cancer patients track appointments and take notes on treatment, including side effects.

Dana-Farber Cancer Institute—Ovarian Cancer
http://www.dana-farber.org
Information about treatment, clinical trials, screening, and prevention.

DiscoverMI.org
Learn more about nuclear medicine and the use of molecular imaging for cancer patients.

Get Palliative Care
http://www.getpalliativecare.org/providers/
Provides information about palliative care, which focuses on relieving pain, stress, and other symptoms of serious illness.

M.D. Anderson Cancer Center
http://www.mdanderson.org/
Provides information about integrated programs in cancer treatment, clinical trials, education programs and cancer prevention.

Memorial Sloan-Kettering Cancer Center
http://www.mskcc.org/mskcc/html/400.cfm
Provides information about treatment for ovarian cancer in addition to research and support for cancer patients and researchers.

National Comprehensive Cancer Network
http://www.nccn.org/index.asp
Clinical recommendations and information about events and resources.

National Lymphedema Network
http://www.lymphnet.org/
Education and guidance for lymphedema patients, health care professionals and the general public on primary and secondary lymphedema.

Radiation Therapy Answers
http://rtanswers.org/treatmentinformation/index.aspx
Information about radiation therapy from physician members of the American Society for Therapeutic Radiology and Oncology. Help finding a radiation oncologist.

RxList—The Internet Drug Index
http://www.rxlist.com/script/main/hp.asp
Provides information about prescription drugs to consumers and health care professionals.

Understanding the Approval Process for New Cancer Treatments
http://www.cancer.gov/clinicaltrials/understanding/approval-process-for-cancer-drugs
Information on the role of the FDA in the approval process for new cancer treatments.

Research

American Association for Cancer Research
http://www.aacr.org/
Information about research and links to publications and databases.

American Institute for Cancer Research
http://www.aicr.org/site/PageServer
Educates the public about the results of research on diet and cancer prevention.

American Society of Clinical Oncology
http://www.asco.org/ASCOv2/Research+Resources
Database of cancer research abstracts and current news on cancer research.

British Medical Journal
http://www.bmj.com/
Original scientific studies, review and educational articles, and papers commenting on the clinical, scientific, social, political, and economic factors affecting health.

Hereditary Cancer Institute
http://medschool.creighton.edu/medicine/centers/hcc/index.php
Research and educational information about hereditary cancer as well as information on genetic testing and links of interest to those affected by cancer.

Journal of American Medical Association
http://jama.ama-assn.org/
An international peer-reviewed general medical journal promoting the science and art of medicine and the betterment of the public health.

Journal of Clinical Oncology
http://jco.ascopubs.org/
Original research and reviews about women’s cancers, supportive care and quality of life issues, prevention, and pharmacology.

Journal of Gynecologic Oncology
http://www.gyneoncology.or.kr/
Access to articles about research in gynecologic oncology.

National Center of Competence in Research Molecular Oncology
http://www.nccr-oncology.ch/
Information about cancer research, comprehensive glossary, and links for further reading.

Ovarian Cancer Research Directory
www.ovariancancerresearch.thegcf.org

Ovarian Cancer Research Fund
http://www.ocrf.org/index.php
Links to resources as well as information about fundraising events (primarily in New York).

Ovarian Cancer Research Program
http://cdmrp.army.mil/ocrp/default.shtml
Information from the Department of Defense about the Congressional appropriations and funding for the Ovarian Cancer Research Program.

Ovarian Cancer Specialized Programs of Research Excellence (SPOREs)
http://trp.cancer.gov/spores/ovarian.htm
Information about National Cancer Institute funded programs that focus on interdisciplinary cancer research with an exchange between specialists in laboratories and clinical settings.

The Lancet Interactive Medical Journal
http://www.thelancet.com/
An independent journal without affiliation to a medical or scientific organization that publishes high-quality clinical trials.

The Ovarian Cancer Institute
http://www.ovariancancerinstitute.org/aboutus.html
Information about ovarian cancer research, news, and events.

End of Life Care

Association of Cancer Online Resources—Hospice
http://listserv.acor.org/archives/cancer-hospice.html
Allows users to search archives of cancer hospice listserv.

Hospice Education Institute
http://www.hospiceworld.org/
Information and education about the many facets of caring for the dying and the bereaved.

Mom, Always
http://momalways.org/
Provides advice to women with a terminal illness, including interviews experts and resources for talking to children about death.

Association of Cancer Online Resources
http://www.acor.org/mailing.html
Guide to an extensive online mailing list about cancer-related topics.  Provides e-mail messages about resources for subscribers.

Caregivers and Families

Kids Konnected
http://www.kidskonnected.org/
Kids Konnected provides friendship, understanding, education, and support for children who have a parent with cancer or have lost a parent to cancer.

National Cancer Institute—Talking Time
http://www.cancer.gov/cancertopics/takingtime/page3
Supportive information for families of cancer survivors.  Details potential reactions of children, spouses, parents, and other family members.

National Family Caregivers Association
http://www.nfcacares.org/
Information on resources and support for the more than 50 million Americans who care for a chronically ill, aged, or disabled loved one.

Well Spouse Association
http://www.wellspouse.org/
Information about the organization’s various programs and events that offer peer to peer support for spousal caregivers.

Young Cancer Spouses
http://www.youngcancerspouses.com/
Social networking forum and bulletin board system helping to bring together young spouses of cancer patients.

Talk, Trust, and Feel Therapeutics
http://www.angriesout.com/catalog/index.htm
Catalogue of books that help teach children to deal with negative emotional states and emotionally stressful situations.

Support

4th Angel Program
www.4thangel.org
The 4th Angel Program is part of the Scott Hamilton CARES Initiative. This is a free, national service which provides a one-to-one supportive relationship (phone or email based) to cancer patients and their caregivers. The patient is matched with a cancer survivor-someone who has gone through the same experience.

CaringBridge
http://www.caringbridge.org/
Create a free website to communicate with family and friends about your cancer treatment, ask for assistance and more.

Cancer Support Community
http://www.cancersupportcommunity.org/
Uniting The Wellness Community and Gilda’s Club Worldwide, the Cancer Support Community is an international non-profit dedicated to providing support, education and hope to people affected by cancer.

Eyes on the Prize
http://www.eyesontheprize.org/
An online support group for gynecologic cancer survivors.

H.O.P.E. (Helping Ovarian Cancer Patients Everywhere) in Oklahoma
http://hope.ouhsc.edu/lttrMessageHOPE.asp
Offers support, education, and encouragement to women diagnosed with any gynecological cancer.

Inspire
www.inspire.com
Connect with more than 17,000 ovarian cancer survivors and caregivers through our free online community hosted by Inspire.

MyLifeLine.org
http://mylifeline.org/
Create a free website to communicate with family and friends about your cancer treatment, ask for assistance and more.

SHARE: Self Help for Women with Breast or Ovarian Cancer
http://www.sharecancersupport.org/index.php
SHARE is a nonprofit organization that offers survivor-led support to women with breast or ovarian cancer and their families and friends through hotlines, support groups, wellness programs, educational forums, and advocacy activities.

The Anxiety Network
http://www.anxietynetwork.com/helphome.html#top
Provides information and links to other Web sites about anxiety and coping with anxiety.

The Joy Foundation
http://thejoyfoundation.org/
Offers various programs that help empower cancer survivors through the arts.

The Lance Armstrong Foundation
http://www.livestrong.org/site/c.khLXK1PxHmF/b.2660611/k.BCED/Home.htm
Information about the organization that seeks to inspire and empower people with cancer through education, advocacy, public health, and research programs.

The Wellness Community
http://www.twcccc.org/
Helps people with cancer and their loved ones enhance health and well being by providing a professional program of support, education, and hope.

Young Survivors

I’m Too Young for This! Cancer Foundation
http://i2y.com/
A pioneering, survivor-led advocacy, support and research organization working exclusively on behalf of survivors and care providers under the age of 40.

LIVESTRONG Young Adult Alliance
http://www.livestrong.org/site/c.khLXK1PxHmF/b.2661399/
A coalition and leadership community of key voices in cancer advocacy and public health determined to bring about positive results for young adults with cancer.

Next Step Fund
http://www.nextstepnet.org/
Provides retreats, camp excursions, creative workshops, and social networking for young adults facing life threatening health issues.

Teens Living With Cancer
http://www.teenslivingwithcancer.org
Information and stories from teens living with cancer. Connects survivors and teaches friends and family how to deal with cancer-related issues.

Young Adult Cancer Survivors, Washington DC
http://yacsdc.org/
Enables young adult cancer survivors (20s and 30s) living in the DC metro area to connect, share experiences, and exchange resources.

Young Empowered Survivors
http://www.youngempowered.org/
A cancer support and social networking group serving young adults affected by cancer along Colorado’s Front Range.

Complementary  Therapies and Nutrition

As with all treatments, the Ovarian Cancer National Alliance does not endorse any particular complementary or alternative therapy. All treatment styles should be discussed with a doctor.

American Cancer Society Guide to Complementary and Alternative Therapies
http://www.cancer.org/Cancer/OvarianCancer/DetailedGuide/ovarian-cancer-treating-c-a-m
Listing of various complementary and alternative therapies for cancer treatment.

Annie Appleseed Project
http://www.annieappleseedproject.org/index.html
Information and links to other sites about complementary and alternative therapies.

The Cancer Project
http://www.cancerproject.org/
Recipes and research about the link between cancer and nutrition.

Cancer Treatment Centers of America – Naturopathic Medicine
http://www.cancercenter.com/ovarian-cancer/naturopathic-medicine.cfm
Information on naturopathic treatment approaches at CTCA.

The Johns Hopkins Ovarian Cancer Center of Excellence – CAM
http://www.ovariancancercenter.org/services/cam.cfm
A summary of some of the therapies that patients have found to be most helpful in relieving symptoms and improving the quality of life.

Meals to Heal
http://meals-to-heal.com/
Home delivery service providing daily meals intended to meet cancer patients’ nutritional needs.

Physicians Committee for Responsible Medicine: Food for Life Cancer Project
http://pcrm.org/health/cancer-resources/diet-cancer
The Food for Life Cancer Project compiles research on diet and cancer, and conducts classes and events about nutrition and cancer.

For Further Reading

CONVERSATIONS! Newsletter
http://www.ovarian-news.org/supportgroups.html
State-by-state self-reported listing of support groups throughout the US and Canada.

Joining FORCEs
http://www.facingourrisk.org/publications/newsletter.html
A quarterly newsletter that provides late-breaking news about hereditary cancer.

Life Over Cancer: The Block Center Program for Integrative Cancer Treatment
http://www.blockmd.com/
Book by Keith I. Block, MD, that discusses the program that he developed to look at the patient’s physical and emotional wellbeing while treating cancer.

MAMM Magazine
http://www.mamm.com/
Magazine devoted to meeting the needs of women diagnosed with breast and reproductive cancers.

Outside the Lines: of Love, Life, and Cancer
http://www.amazon.com/Outside-Lines-love-life-cancer/dp/1881554333
Annette Leal Mattern relates her own story battling ovarian cancer to give others hope in the fight against the disease.

On the Lighter Side

Blue Hydrangeas Tea Party
http://bluehydrangeateaparty.org/
Information about hosting a Blue Hydrangeas Tea Party to raise money for a local or national program devoted to raising awareness about ovarian cancer.

Care Calendar
http://www.carecalendar.org/
Help creating an online calendar that can organize meals and coordinate other assistance efforts for families during times of illness.

Crabby Cards
http://www.crabbycards.com/
Greeting cards that touch on ovarian cancer, cervical cancer, leukemia, and children with cancer.

Joan Roberts Foundation
http://www.joanrobertsfoundation.com/
Information about fundraising events in North Carolina and an online store, featuring a BBQ sauce marketed to raise awareness about ovarian cancer.

Lily Oncology on Canvas
http://www.lilyoncologyoncanvas.com/
The Oncology on CanvasSM: Expressions of a Cancer Journey Art Competition and Exhibition was developed by Lilly in 2004 as a way to honor those who are impacted by cancer — as a patient, caregiver, friend or family member.

Look Good…Feel Better
http://www.lookgoodfeelbetter.org/
Help from a free, non-medical, brand-neutral, national public service program supported by corporate donors to offset appearance-related changes from cancer treatment.

My Lifeline
http://www.mylifeline.org/
Helps cancer patients and family set up personal Web sites and provides links to cancer-related topics.

New Dimensions
http://www.newdimensions1.com/new-dim-think-pink
Online jewelry store with a category of accessories devoted to raising awareness about women’s cancers.

Rocker Mom
http://www.rockermom.org/about.html
Information about “rocker” moms raising awareness about ovarian cancer and funds for research.  Includes a store of rocker mom merchandise.

The Humor of the Tumor
http://www.oncolink.com/books/books.cfm?b=14
Cancer Comics created by Wende Heath who combines art and humor to help other cancer survivors laugh and feel alive again.

The Pampered Patient
http://www.thepamperedpatient.com/
Cancer gifts and products for cancer patients and caregivers.

TherapEase Cuisine
http://www.therapeasecuisine.com/
Offers clinically driven meal programs for cancer patients at a monthly fee.