Acknowledgments

Select a State:

Ovarian Cancer: A Call for State Action provides the first and only comprehensive look at access to quality care for women with ovarian cancer in all 50 states and the District of Columbia. Created and distributed by the Ovarian Cancer National Alliance, this report describes and evaluates the environment for women with this disease in each state. Our goal is to begin a conversation about how policies and programs within a state affect ovarian cancer patients. In doing so, we hope to stimulate states to develop a legal and regulatory environment best suited to promoting access to quality care for anyone affected by serious illness.

Through this website, you can learn more about the criteria and process we used to evaluate each state, the conclusions drawn from our evaluations and our recommendations for how states can take actions that result in better care. While some of our findings were discouraging, we also found numerous examples of legislation that benefit women with this disease. There is ample opportunity for states to rise to the challenge of improving care for women with ovarian cancer.

This groundbreaking report would not have been possible without the Ovarian Cancer National Alliance Report Card Advisory Committee. The experts who served on our committee freely shared their collective expertise, wisdom and insights to help us determine which state laws influence the quality of care given to women with ovarian cancer and the relative importance of these laws. They provided suggestions regarding the content and focus of the report as well as guidance about its publication and distribution. Their help has been invaluable.

We also wish to thank the staff and consultants who made this report come to life. Sarah Walinsky conducted the painstaking research needed to evaluate and rank each state. Amanda Davis and Abby Allender helped write and design the document you are reading. Ilisa Halpern Paul and Erin Will Morton, from the law firm Drinker Biddle & Reath, provided assistance in identifying measures, obtaining access to key respondents and developing a plan to disseminate our findings. The Ovarian Cancer National Alliance Board of Directors offered encouragement and support to the project team.

We are deeply grateful for the generous support Genentech and GlaxoSmithKline provided for this project.

The message of this report is clear: as a nation, we cannot afford to stick to the status quo on ovarian cancer. We hope this document will spark many conversations and ideas about how to improve the environment in states to better serve women with this disease. To that end, we encourage you to share the contents of this report and take action. Included in the report are recommendations as well as sample legislation. If you have questions about our findings, or wish to work with the Alliance on policy change in your state, please contact us at (202) 331-1332 or ocna@ovariancancer.org.

Cara Tenenbaum
Vice President for Policy and External Affairs

OVARIAN CANCER STATE REPORT CARD ADVISORY COMMITTEE

Ivy Ahmed, MPH, MCHES
Vice President, Education and Outreach
Cancer Support Community

Sherry Salway Black
Director, Partnership for Tribal Governance, National Congress of American Indians
Former Executive Director of the Ovarian Cancer National Alliance
Ten-year ovarian cancer survivor

Robert Burger, MD
Professor, Surgical Oncology
Section, Gynecologic Oncology
Director, Women’s Cancer Center
Fox Chase Cancer Center

George Coukos, MD, PhD
Celso Ramon Garcia Professor in Obstetrics and Gynecology
Director, Ovarian Cancer Research Center
Assistant Chief, Gynecologic Oncology
Penn Ovarian Cancer Research Center

Richard Hamburg
Deputy Director
Trust for America’s Health

Karen Orloff Kaplan, MPH, ScD
Former CEO of the Ovarian Cancer National Alliance

Rebecca Kirch, JD
Director, Quality of Life and Survivorship
American Cancer Society

Erin Will Morton, MA
Government Relations Manager
Drinker Biddle & Reath

Melissa Palmer
Health Policy Analyst, Division of Cancer Prevention and Control
Centers for Disease Control and Prevention

Ilisa Halpern Paul, MPP
Managing Government Relations Director
Drinker Biddle & Reath

Janice Phillips, PhD
Former Robert Wood Johnson Fellow with the Office of Senator Jay Rockefeller

The Honorable Jamie Raskin
Maryland State Senator

L. Christine Schmidt
Board Member
Ovarian Cancer National Alliance
12-year ovarian cancer survivor

Laura Segal
Director, Public Affairs
Trust for America’s Health

Robin Strongin
President and CEO
Amplify Public Affairs

Cara Tenenbaum, JD
Vice President for Policy and External Affairs
Ovarian Cancer National Alliance

Elizabeth Thompson
President and CEO
Susan G. Komen for the Cure

Katrina Trivers, PhD, MSPH
Epidemiologist, Division of Cancer Prevention and Control
Centers for Disease Control and Prevention

Sarah Walinsky
Legal Intern
Ovarian Cancer National Alliance

Judith Waxman
Vice President for Health and Reproductive Rights
National Women’s Law Center

The Honorable Peggy Welch
Indiana State Representative

Participation should not be construed as an endorsement of the final report by Committee Members and/or their organizations.