June Newsletter

A Message from the CEO

Dear Ovarian Cancer Community Member:

You are among the thousands of voices in our community, of women who live with the ovarian cancer, of loved ones of those who are gone and of people personally touched by an ovarian cancer journey.

Together, I believe we can improve the lives of these women by sharing our knowledge and pooling our influence. To that end, I want to join you at our upcoming Power is Teal Conference in Washington, D.C. from July 10th to 12th and for Advocacy Day on Capitol Hill on July 13th.

Here are my top 10 reasons why I want YOU to be there:

10. Newcomers Gathering- A chance to meet others who are attending the Conference for the first time too.

9. Clinical Trials Forum – This is an in-depth and informative way for ovarian cancer patients and their loved ones to learn more about how to get involved with clinical trials.

8. Partner Member Leadership Summit - A chance for our active Partner Members around the country to get together, share triumphs, best practices and future plans.

7. Mello-Abrams Lectureship – The first of an annual lectureship established by Jay Schwamm in memory of his late wife Judy Mello and in honor of Judith Abrams. Judy Mello, who lost her life to ovarian cancer and her dear friend, Judith Abrams, as President of the Ovarian Cancer National Alliance, accomplished so much for women with this dreadful disease. Dr. Michael Seiden will give this important first lecture.

6. Remembrance Ceremony – A beautiful chance to honor the women we have lost to ovarian cancer.

5. Exhibit Hall Marketplace – The place to be to learn about products and services available to women with ovarian cancer and purchase a wide variety of items – jewelry, scarves, publications and much more.

4. Nationally Recognized Featured Speakers including our very own Scientific and Medical Advisory member, Dr. Barbara Goff.

3. I Got Sick Then I Got Better, written and performed by Jenny Allen. This play is a comic riff on one woman’s adventures after falling down the medical rabbit hole. Read more about the play here.

2. Advocacy Day on Capitol Hill – Your chance to meet one-on-one with your elected officials and staff to share your personal stories about ovarian cancer as well as ask for support on a number of federal issues that are essential to fighting ovarian cancer. Space is limited so be sure to register early. Advocacy Day Registration deadline is this Friday, June 4, 2010.

1. The Ovarian Cancer National Alliance’s Annual Conference is the largest ovarian cancer specific conference that brings together researchers, clinicians, survivors and caregivers to learn about the latest developments in diagnosis, treatment and quality of life for women with ovarian cancer … and we want you there!

I hope to see all of you in a few weeks at the Power is Teal Conference. This is the time. This is the place. You can help make a difference. We hope you will join forces with us in the Nation’s capital.

Please visit our full agenda at ovariancancer.org/conference/2010 or call the office at 202.331.1332.

With great appreciation,

Karen Orloff Kaplan
Chief Executive Officer
Ovarian Cancer National Alliance

Note: Early Registration ends at midnight tonight – Tuesday, June 1st. For more information and to register, visit ovariancancer.org/conference/2010.

What’s New?

Our Shop + Give Program:

Turn everyday Shopping into everyday Giving

http://shop.ovariancancer.org/shop is a unique online shopping mall where you can shop for the things you would normally buy, from the brands you would normally choose, and at the prices you would normally pay. Here’s the best part – when you shop through this site, you’re also helping Ovarian Cancer National Alliance benefit from all your purchases.
What do you need to do?
1. Visit http://shop.ovariancancer.org/shop
2. Download the EZ Shopper App (takes less than 2 minutes)
3. Shop away!

The New Teal Dolce Vita BELIEVE candle

The BELIEVE candle is an uplifting, invigorating scent created with 100% essential oils giving the fragrance of the healing properties everyone needs in today’s world. The inspiration behind this candle comes from a burning passion in the heart of the company’s president for the cause of ovarian cancer; his grandmother died of this disease. 100% of the proceeds of this candle benefits the work of the Ovarian Cancer National Alliance.

Purchase the BELIEVE candle

From the Policy Department

Come to Capitol Hill for Advocacy Day on July 13th:

Join with other advocates from across the country whose lives have been impacted by ovarian as we walk the halls of Congress and ask for increased funding for federal ovarian cancer research and awareness programs.  Deadline to register is June 4th.

Register here.

If you have questions about Advocacy Day, please email your questions to action@ovariancancer.org.

Tell your Representative to support ovarian cancer research:

The Ovarian Cancer National Alliance is asking advocates to contact their Representative and request that they support the ovarian cancer community’s funding request of $30 million for the Department of Defense Ovarian Cancer Research Program (DoD OCRP).  Please email and then follow-up by calling.

Easy-to-follow instructions:
Email your representatives and then follow up with a phone call.  You can leave a message if you’re calling after hours or during the weekend.

Survivors Teaching Students Corner

The Ovarian Cancer National Alliance’s Survivors Teaching Students (STS) program brings the faces and voices of ovarian cancer survivors into the classroom to inform medical, nursing and physician assistant students about their experiences with the disease. STS aims to enhance students’ understanding of ovarian cancer’s symptoms and risk factors to facilitate diagnosis and detection sooner when they begin practicing medicine. We would like to share a few words from one of our nursing schools in NYC:

“Our students are riveted by your speakers. It takes on almost a sacred environment. The volunteers readily answer questions about the way the cancer feels, the signs and symptoms and cancer markers and genetics. In addition, there have been striking bold answers to questions about living with cancer, about children, about families and about the health care system. Your program has taught us how we can care for patients better, what happens when it is over and how it is never really over.”

- Elizabeth Cohn, Associate Professor at Columbia University, School of Nursing

Learn more about Survivors Teaching Students

Upcoming Events

Power is Teal Conference
July 10-13, 2010
Washington, DC

Gynecologic Cancer Foundation’s Survivors Courses and Workshops
The next ovarian cancer course will take place in Indianapolis, IN on Saturday, June 12 from 9:00am-4:00pm.
Click here to view all dates, location and times.

Wear Teal Day!
September 3, 2010 (first Friday in September)

Special Announcement: Mothers We Love winners
Jerri Grobe – story submission winner
Marilyn Usinowicz – video submission winner
To read all the inspiring stories, click here.

This month’s Book Club Selection
Outside the Lines … of love, life and cancer by Annette Leal Mattern

Board of Directors & Staff Members