November Newsletter

From the President and CEO …

We are delighted to welcome you to our first monthly online newsletter from the Ovarian Cancer National Alliance. At the beginning of each month we will provide you with information about the medical and scientific communities, upcoming events, activities on Capitol Hill and much more. We hope each month we can summarizes what’s valuable to you. We welcome your comments about how to improve its content and how we can continue to serve you better with timely, relevant news and views.

Warm regards,
Karen Orloff Kaplan, CEO
Judy Abrams, Board President

What’s NEW?

Symptom Diary and Practice Guidance Tool Kit

The link below provides a packet of tools that women can use to pursue answers to their concerns that the symptoms they are experiencing may be evidence of ovarian cancer.

The first tool is a personal Symptom Diary, developed by the Ovarian Cancer National Alliance and the Gynecologic Cancer Foundation, which can be used to track persistency of symptoms over time that may indicate the possibility of ovarian cancer. Completing this diary will help you document your concerns and assist you and your doctor in determining next steps.

The second tool is an Interim Practice Guidance and outlines important steps your doctor may take to evaluate whether your symptoms may be ovarian cancer. Leaders in ovarian cancer research, diagnosis and treatment have developed these symptom management strategies based on their expertise and years of practice. The Ovarian Cancer National Alliance believes this very important information should be shared publicly to help women with ovarian cancer get diagnosed sooner.

For information and to download the Symptom Diary and Practice Guidance Tool Kit, visit http://www.ovariancancer.org/diary

Our online store

We have some new, very TEAL, very cool items at our online store … just in time for the Holidays! Hurry and place your order now.

To check it out, click here.

Our Facebook page

Become a fan and follow us on Facebook.

From the Policy Department

Social Security Disability Rules Changed

The Ovarian Cancer National Alliance has been working on your behalf to make it easier for women with ovarian cancer to access needed Social Security benefits. The Social Security Administration will now recognize that late stage ovarian cancer will automatically qualify you for disability benefits. This change will reduce the hassle and time between filing your claim and getting the valuable benefits you deserve. We worked hard to convince Social Security Agency of this needed change and will continue our efforts to expand this new authority.

To read the full article, click here.

What you need to know

The 411 on the seasonal flu and the H1N1

Together with the White House, the Ovarian Cancer National Alliance participated in a discussion about the flu, both seasonal and the H1N1 viruses. The discussion was led by cancer and vaccine experts at the Center for Disease Control and Prevention (CDC).

Women with ovarian cancer have a higher chance of having complications from the flu virus. As a result, the Ovarian Cancer National Alliance advises you to read the information provided and consult your doctor about what actions you should take to protect yourself.

Click here for the full article.

Upcoming events

GCF’s Race to End Women’s Cancers

Nov. 8th in Washington, DC

Team TEAL will be running and walking in the Gynecologic Cancer Foundation’s Inaugural Race to End Women’s Cancer, a 1 Mile Walk, 5K Fun Run and a Half Marathon. For additional information on how to join Team TEAL, click here.

Kaleidoscope

LIVE event Nov. 16th at the Verizon Center, Washington, DC

Kaleidoscope is a holiday entertainment variety special featuring Olympic skating champions and GRAMMY Award-winning music artists.

For free tickets and additional information, click here and become a part of the experience.

Turn Up the Heat on Ovarian Cancer! A Celebration of Women Chefs benefitting the Ovarian Cancer National Alliance

February 2, 2010 in Washington, DC

The Ovarian Cancer National Alliance’s signature Gala provides a festive
opportunity to sample gourmet recipes from dozens of renowned women
chefs from the DC area. Your contribution supports the Ovarian Cancer
National Alliance as we work on behalf of women with ovarian cancer.
For more information and to purchase tickets and/or sponsorship packages, click here.

A Virtual Holiday Dinner …. stay tuned!